A Little Catch Up

It’s been a little while since I’ve been on here, so this is a little catch up post.

I’ve had a few ups and downs with my health since February including a serious incident with sepsis and a pulmonary embolism, which landed me hospital for a while. Then, as I was recovering from all this, I had a couple of pneumonia infections following just picking up simple colds, so it’s been one step forward, then two steps back.

There’s had to be a lot of laying low and rest and recuperation, but in between we’ve also had some lovely family times and best of all celebrated the birth of our beautiful new granddaughter Darcy. I’ve been concentrating hard on getting better and spending time with my family and especially my gorgeous grandchildren. They are so important to me and with my fragile health, even more so.

My medications have been stepped up considerably since last autumn, including antibiotic nebulisers twice daily to try and help prevent the respiratory infections and blood thinners to help the blood clots in my lungs and prevent any further clotting. We don’t know where the clots came from, so the blood thinners are permanent. I’ve also been provided with both home and ambulatory oxygen to help my breathing, just as and when I need it. So I’m seeing how I get along with all of this now and if it helps. We feel the nebulisers have helped, as although I’ve picked up colds, I’ve mainly managed to stay off intravenous antibiotics and stayed out of hospital just on oral antibiotic medications, so I’ve been pleased with that.

We’ve been trying to make the most of all the times I’ve been well, getting out and about with the family when the weather has been good and enjoying life to the full. We have had many lovely times in between the mishaps and we have some lovely things planned for summer. I’m keeping fingers crossed that things are on the mend now and I’m having a lovely steady spell where we can just enjoy the summer and all it brings.

Thanks for reading and I hope to be back blogging more regularly now things are much better. Wishing everyone a lovely summer.

February

February seems to have come and gone with the blink of an eye – so different to January, which always seems the longest month of the year after all the festivities.

We celebrated Rose’s birthday at the beginning of the month and had a lovely trip to London to visit her and David and go out for lunch. We ususally drive to her flat in London, which makes it easier for me with my breathing problems and definitely makes it easier when the weather is cold as my breathing suffers more in the cold. It had actually been snowing the day before and was perishing cold.

A few weeks ago we visited the gardens at Benington Lordship, they open them every year, as they have a fabulous display of snowdrops. It’s always something I look forward to, as the days start to become a little longer. The weather had begun to change. It felt quite mild and the sun was out. The snowdrops didn’t disappoint and looked so beautiful. It’s always very uplifting to see them and feels like the start of the gardening and flowering season, with the whole year still ahead of us, days becoming lighter and longer and the sense that everything is starting to come to life again in the garden.

We went away to Nottingham soon after for a lovely family wedding, Rob’s niece’s. It was a beautiful wedding and the weather became surprisingly even warmer. We’d hired a cottage for us all and had a fabulous time.

Now we’ve reached the end of the month nearly and the weather has become even warmer, reaching up to 20 degrees in some places. Rob has actually mowed the lawn for the first time ever in February and the crocuses and daffodils are out in full bloom in the garden. Like many, I’ve been digging a few more summery things out of my wardrobe, but those big coats, jumpers and scarves and gloves are still out.

Last year’s February can be remembered for the bitter cold and the ‘Beast from the East’ storm and this year’s is going to be remembered for record temperatures and glorious sunshine. We started February with a little snow and we’ve ended with a beautiful early spring.

Wrest Park in Winter

January and February can be harder months for getting out and about. The weather can put us off, as it’s often very bleak and cold and days are shorter. It can be surprising how beautiful and different places can look at varying times of year. I like to revisit places throughout the year to see them in a different light and different way as the months and seasons change.

Wrest Park is a place we go to often, it’s an easy place for me to manage walking now I get quite breathless, as it’s fairly flat with good pathways. It’s very wheelchair and pushchair friendly, a great place to take our dog Ted and very child friendly when we bring little Freddie with us. There’s a great play area and a cafe where you can sit out. I like to sit outside, even in the depths of winter and bask in those snippets of sunshine and enjoy the fresh air. It can be very uplifting and I feel it’s important for my wellbeing both mentally and physically.

We have visited a few times this winter and it was a glorious sunny day when we went a few days ago. It looked such a contrast to summer, with frost lacing the ground and layers of ice over the water. There was an early morning mist, but the sun was breaking through, burning it away, which looked quite spectacular.

The birds were enjoying a good singsong as we walked through the woods and there were three beautiful cygnets ducking and dipping for food through the ice. A red kite kept on circling above us. And those first signs of spring – snowdrops about to open, trees in bud, daffodil shoots – all that promise of what’s ahead of us.

Winter time can be so underestimated, as there’s still so many beautiful things to see.

Happy January

Well Happy New Year everyone, or it’s probably Happy January now that all the festivities are long over and well behind us. I hope you all had a wonderful time and enjoyed a rest with some quiet family time.

For me, a New Year always brings thoughts of what may lie ahead and wondering what may be in store both for me and my family. A whole new fresh year waiting in front of you can feel so exciting.

We enjoyed a lovely December and Christmas and that’s partly because there were total zero hospital stays. Anyone who has been following my blog over the years will know that December or Christmas seems to guarantee a bed in hospital for me at some point. This has happened ever since I was diagnosed with Pulmonary Hypertension and continued on after my transplant except for the second year after my transplant. Eight out of the nine last December’s has been marred by this, so this year I can safely say two out of ten have now been hospital free and I am so pleased and relieved about this. Hopefully this is a sign the pattern is being broken. I hope so.

It has meant that I’ve had a strong start to the New Year, so I’ve been trying hard to keep as active as I can. It can be difficult with lungs that function at less then fifty per cent, but in colder weather it can be even harder, especially if there is a cold wind. I’ve been trying to get outside as much as I can though and walk at my own pace as far as I can manage. I see my walking as vital to keeping my heart and lungs as healthy and stable as they can be, so keep pushing this within my limits. We’ve had some beautiful January days and it’s always uplifting and good for the soul to see some sunshine and go for a walk outdoors.

We were in the Lake District in early January and were blessed with a couple of days of beautiful sunshine. We were able to get out and about with the cameras, taking lots of photos and enjoying all the magnificent views and some lovely walks. It was bitter cold, but it can feel refreshing and invigorating to wrap up warm and cosy and just go with whatever the weather is doing. The weather is also an excuse to warm up and rest with a hot coffee in cosy cafes and eat warm comforting food in a pub with a roaring log fire!

And New Year resolutions? I know many people use the start of the year to make resolutions. This year, I haven’t bothered, that doesn’t mean I don’t care about things and have lost interest or anything or don’t want to try anything new; in fact it’s the total opposite. I just want to keep on doing all I’ve been doing, which involves spending time with my family, catching up with friends, travelling and visiting places old and new, continuing our work with the Papworth Transplant Support Group and the hospital and keeping up my photography, reading, writing and working on my second book. The list is probably endless and being mum and grandma is a big priority for me nowadays, so not much point in adding New Year resolutions to my list of ‘to dos’.

We have lots planned over the next few months – it’s always great to have lovely things to look forward to. Before January ends we have Burns Night and Freddie’s second birthday celebrations, yes he’s going to be two very soon. Where has the time gone? Then we have more birthday celebrations and a family wedding in February. March is a huge month and life will change again as ‘grand baby’ number two is expected. Life feels very busy, busy, busy and seems set to continue so, which is just how I like it.

I was back at Transplant clinic last week, I managed to go the whole two months without needing to phone up and visit clinic, which has been a first in a very long time. We were all pleased with this, my consultant included. Everything is looking fairly stable and my consultant decided that my ‘winter’ anti-biotic nebulisers should become a permanant part of my daily meds rather than just for winter. It’s a way of keeping the incurable pneumonia in my lungs at bay and it does seem to be helping so far. I’m happy with that and very pleased things are relatively stable. I have to go back in another two months and they are arranging a few extra tests just to investigate the breathlessness further and ensure they are on top of things.

I think that’s all my January news so far, it’s been a little while since I’ve posted as I decided to have a little break over the festive period and cut back on the social media for a while. I hope you’ve all had a good start to the New Year and have lots of things planned and to look forward to.

Thanks for reading as always and Happy January to you all…

Winter Time

After such a beautiful summer, with its soaring temperatures, followed by one of the most glorious autumns, we’re heading towards the shortest day of the year and those dark mornings and dark evenings and sometimes those days that never seem to come daylight. Real winter time.

Winter time can be defined in different ways. The Met Office using the calendar year and making winter the three months following the 1st December, because December, January and February are generally the coldest months.

Some define winter according to the winter solstice, that being the day we have the least sunlight and the day when the sun is positioned furthest away from the earth as it orbits the sun.

I think for most of us, the weather can define how we think of winter. During November the weather always seems to slide seamlessly into colder, darker days and by December it usually feels like winter is underway. It has done this year anyway.

We seem to have had a real mix of weather over this last few weeks from crisp, cold and frosty days to gales, wind, storms and wet, foggy and misty weather. Some areas have even had snow. The whole range. With such a variety it’s no wonder we’re always talking about the weather in this country.

Luckily, we have had some beautiful days interspersed with all the bleaker weather. There have been some glorious mornings that start with a beautiful sunrise and then some stunning sunsets, which finish the day on a spectacular note. These days are such a treat during these winter months – the days when you can get outdoors and enjoy a good walk, the sunshine, nature, beautiful views and see winter at its best.

There’s also all that festive sparkle, as we nearly reach Christmas too. Thoughts of those winter traditions spring to mind – mulled wine, hot ciders and spiced punches. The aromas of the festive cooking – oranges, cinnamon, spices welcoming you inside. Christmas cake, mince pies, hams cooking on the hob, turkey, duck and beef roasting in the oven. A warm fire and candlelight. I look forward to these and this weekend’s Christmas preparations…

A Favourite View

We were lucky enough to spend a few days in the Lake District earlier last week and amongst some very rainy, wet and cold days we were fortunate to enjoy some glorious winter sunshine. We decided to drive up to the Western Lakes and spend some time exploring around Coniston Water.

I say ‘explore’ but it is a favourite area of ours, probably my most favourite spot, so we know it quite well. Whatever time of year we visit, the views are always stunning. When we arrived on this particular day, the views took our breath away though. It was a still morning and the waters were calm, the sky very blue and the bright winter sunshine was reaching through the bare trees casting both light and shadows at tbe same time. The reflections of the mountains and trees in the blue and black pools of water were amazing.

We were the only people there, so very different from the crowds and the heat of summer. During the hot summer, the meadows here were full of families picnicking and the lake was busy with kayacks, canoes and swimmers. The small car park was packed full to the brim with cars. On this day there was nothing but peace. We were able to quietly amble around and soak up the views, Ted ran safely off lead and explored the meadows and splashed in the water.

I couldn’t quite make my mind up, ‘When was this place at its most loveliest?’ When you are swimming or kayaking in the lake, in the heat of summer, the skies blue with large fluffy clouds hovering over the mountain tops or on this peaceful, crisp winter day, which offered nature at its most magnificent and calm?

Autumn’s End

We’ve been so lucky to enjoy such a beautiful autumn this year and during November, I’ve been enjoying and savouring those last sunny days of autumn. There’s been so many glorious displays of colourful leaves both on the trees and on the ground.

The park looks different each day, as more and more leaves have fallen. Some fall gently like confetti on those still and sunny days and some have been blown away harshly on wilder, wet days. The trees are becoming more bare as we slide nearer to winter and the colder, darker months.

The landscape looks so different as the freshly fallen leaves cover the ground, there’s something special about walking in them, kicking them up in the air as you go. The flora in the woodlands has changed colours, now in its last flurry of golden browns and golds before much of it dies back and goes dormant for winter.

The low sunlight filters through the woodlands, illuminating those last snippets of russets, reds and golds. There are few leaves on the trees now as autumn clings on and we’re about to leave November.

Fields are still green, but the growing grass is slowing and the grass is wet and damp with mist and dew. The weather has turned colder and wetter this last few weeks, the skies grey and dull with mist and drizzle. The temperature has dropped and we’ve even had a few frosts. I prefer the cold frosts and a bright crisp day to the fogs and greyness of this late November. If it’s going to be winter very soon with the nights drawing in, hopefully we’ll have more bright, crispy cold days than those days when it doesn’t seem to come properly light somehow.

At least as we reach the end of November, and if there are grey, dull days, there’s the the glitz and sparkle of Christmas beckoning. It’s like a bright warming light in front of us. I already have my Christmas preparations underway. I usually start early having ended up in hospital seven of the last eight Decembers, I feel pressure to be organised ‘just in case’. I’m aiming very hard for a hospital free December this year and having just had a reasonable clinic, I’ve no plans to be back at hospital before January.

I’m established on preventative oral antibiotics and nebulised antibiotics to try and stave away the chronic pneumonia that keeps rearing in my lungs if I pick up an infection and to help with respiratory infections. So far, so good and I’m keeping busy with Christmas preparations and enjoying life while the going is good again. I’m also trying hard to avoid the winter bugs going around.

As we reach the last week in November, our family have already started our traditional run up to Christmas. We enjoyed our Papworth transplant group’s Christmas party on Saturday – the Christmas jumpers were out in force. On Sunday we went on the Santa Express at the Nene Valley Railway with all the family and little Freddie. It won’t be long before we’ll be bringing down the Xmas decorations from the loft and choosing the Christmas tree.

After a stunning autumn and great November, with Christmas looming there’s so much to look forward to as we head into December and winter.