Here’s to November

We start November and I feel that cringe deep inside about those long, cold winter months ahead and those shorter days and longer nights. I also have that fear of more bugs and hospital, which seem to have become a bit of a winter tradition in my life as much as Christmas is. As we move nearer to winter time, I find myself needing some motivation and inspiration to conjure up of all those good things about these darker months.

On the health front, I’ve had my flu jab and I’m on preventative measures to help my lungs over winter. I’m at clinic for checks every few weeks. I’m trying to keep fit, rest, eat well and avoid the bugs where I can. I know I’m as prepared and ready as can be, so it’s just a case of one step at a time and taking each day as it comes and fingers crossed to stay in good health.

As for the rest, the start of November has been such a pleasant surprise. It has been very cold compared to the milder temperatures we’ve had recently, but some of the days have been so glorious and sunny that we’ve wrapped up warm and been out and about in the countryside. We’ve been enjoying all what remains of the stunning autumn scenery – those golden trees and leaves against brilliant blue skies and fluffy, high clouds.

It’s scenes like this that have reminded me that the winter months can be just as much fun as those of summer and have me thinking of all the positive things to look forward to.

It’s lovely to dig out those warm winter coats and woollies, those snuggly scarves, hats and gloves in anticipation of cold, crisp walks with our dog, Ted. Those walks on a Sunday while a roast is cooking in the oven. The warm house and delicious smells when you return.

If you don’t want to cook, a country pub with a roaring log fire is hard to beat. I remember walking into a pub high up in the hills on our way back from Christmas shopping in Bowness last year. We were the first to arrive at lunch time and were given a huge welcome and told to sit by the fire – it was a perishing cold day. They piled more logs on the stove for us and we warmed ourselves while we waited for a delicious hot lunch.

Then there’s preparing hearty winter dishes for dinner, cosy dinners by candlelight and cosy nights by the fire with the curtains all drawn. The dog by my feet – or more often than not snuggled up beside me. Soft cosy clothes, socks and slippers. A cold and dark night is a great excuse to wrap up under a blanket in favourite chair and read or indulge in watching a box set or two. Of course, scented candles are a complete ‘must’ and that’s after a long pampering soak in a hot bath.

Then there are the glorious sunrises and sunsets to enjoy – the sunrises are late enough to catch a glimpse of when you wake up on a winter morning and the sun sets nice and early and well before bed time. Then the excitement of waking up to fogs, mists, heavy frost or snow – not so exciting if you have to go to work or travel – but beautiful if you can watch from inside and go about your day without the hazards to worry about.

Then there’s the glamour and glitz of ‘Strictly’ – now a recognised winter staple – the sparkly costumes, the fabulous dancing as we move through Halloween, Bonfire Night and towards Christmas.

Christmas – it’s probably the biggest most excitable thing looming as we step into November. November is the time I usually finish off buying all the presents and start the wrapping in readiness for December. I love a Winter Market or a Christmas Market. We’ve even managed to visit one already last week at Holker Hall and it was such a perfect sunny day – beautiful stalls with an assortment of wonderful goodies, warming pit fires, a live jazz band and delicious hot food and drinks.

I love the build up to Christmas – the anticipation, the preparations and then the actual festivities and day itself. Christmas shopping, Christmas carols, Christmas concerts and Christmas parties.

Well, I think I’ve found enough lovely things to think of for now to inspire and enjoy myself until January at least! What do you enjoy about the winter months?

Happy November everyone!

October Sunshine

October is nearly over – where did it go? It’s been such a glorious and beautiful month with plenty of warm mellow sunshine this year. The clocks have gone back soon and we enjoyed the benefit of an extra hour in bed. I always like it when we gain an extra hour, not so much when it’s the other way and we lose one though.

During this month I’ve still been recovering from a virus and pneumonia and so the beautiful weather has been a real boost. Being ill again has knocked my lung function down once more, so it’s been a case of keeping up the physio by exercising my lungs as much as I can. Hopefully some of my lung function will return and I’m hoping it will be back to the 48% or so I’d managed to get it to during the summer. Breathlessness is a thing I’ve now had to reluctantly accept back in life, as my lungs have deteriorated during the last few years. When my lungs work at around 50% though, I find I can manage and still get out and about for short walks and I’ve counted my blessings knowing from my past experiences and those of friends that things could be much worse.

The lovely sunshine has meant we’ve been able to get out and about with the help of my trusty old wheelchair to take the pressure off my lungs while they recover. I’m trying hard to build up my lung capacity again by walking as much as I can, but I’m still very breathless, so it’s literally one step at a time and the wheelchair in the meantime enables us to be out for longer and explore that much further when it’s a glorious day. I do intend for it to be only a temporary measure though. The weather has been very uplifting and great motivation while I tackle this blip.

I do love this time of year and autumn – Rob laughs at me and says, ‘But you love every time of year!’

I love trying to catch and hang on to those last snippets of summer. This year we keep saying, ‘This must be the last warm sunny day’. Each week, we keep on saying it, as the weather keeps on teasing us with higher than normal temperatures and warm sunshine.

At the same time as hanging on to summer, I’ll be excited about all that October and autumn have to bring.

I love the colours of October – the browns, golds, yellows, oranges, russets and reds and the way the flowers keep on flowering and flowering, pushing against time, as though they’re challenging nature before the first frosts appear. There’s been so much colour in the garden this October and so many gardens we’ve visited recently have looked stunning with banks of colourful dahlias, michaelmas daisies and remaining summer plants like roses, verbenas and salvias, which stubbornly refuse to stop blooming even though winter looms. The late flowers brighten up the garden and can light up the day.

Best of all I love the trees and leaves in October. I love how the colours change and how beautiful they look in the autumn sunshine when the sun is lower in the sky and has a deeper, golden hue. I love it when there’s a gentle breeze and the leaves trickle down slowly and then there’s carpets of leaves to wade through and kick beneath your feet.

I enjoy cooking more in autumn – October always seems to kickstart my cooking after the salad days and heat of summer – making hearty warming dishes and cooking up the apples from the garden – there’s a sense of preparing for winter and the colder days.

Of course, October always ends with half term holidays and Halloween. I like to join in the fun of it – Rob will carve out a pumpkin or two and I’ll make the obligatory pumpkin soup in the slow cooker. It’s a fun time for children and families and I love the see the wonderful colouful pumpkin and squash displays when we’re out and about. I like to have sweets in the house in readiness for the trick o’ treaters.

That’s my October. 🎃🎃🎃

Five Years On…

I relax in the sunshine on a seat looking over the salt marshes and out to sea. I soak in the stunning view, breathe in and out deeply savouring the salty air deep down in my lungs. Those precious lungs – well precious heart and lungs, but lungs more precious and fragile than ever now as they take the brunt of every storm my body weathers since my transplant five years ago. I can feel the gentle sea breeze and mellow sunshine on my face. Birds are gathering for their journeys to warmer climates, but singing and twittering as though it’s high summer. Beautiful September sunshine on this the fifth anniversary of my heart and double lung transplant.

I remember a time I’d been here in Norfolk before, over seven years ago now. Rob pushing me in my wheelchair along board walks to the beach when I took the call to say I’d been placed on the active transplant list. We were on holiday at the time trying to make the most of life or what I might have had left of it. We were trying to make sense of a situation where I’d found myself terminally ill and been given only two years to live if I was lucky. At the same time, I’d been told I needed a heart and double lung transplant and that on average the wait for this operation takes two years. Three people a day were dying while waiting for a transplant. The odds felt against me and I had to prepare myself both ways – preparing to die and preparing to live. A confusing situation but survival was my only focus.

Then my mind flits to four years ago when we came back here again. It was the first anniversary of my heart and double lung transplant. No wheelchair this time, my health restored. I could walk for miles by now, my strength recovered. It had been an incredible first year since my transplant. Suddenly I could do all those things that everyone takes for granted – simple things like showering, pushing a trolley around the supermarket, driving and even ironing and housework. Just simple things and I would even pinch myself that it was all actually real; that ‘yes’ I had my health back and I’d been given the best gift of all – the gift of life.

Five years on now and I’m back in Norfolk with my family to celebrate this incredible milestone. As I sit here, I think of all the incredible things I’ve been able to achieve because of my donor. From first simple steps like taking a shower to living my dreams and being able to travel abroad again. I’ve visited New York and many cities across Europe, plus been on a mediterranean cruise and travelled on the Orient Express.

I’ve seen Sarah and Rose both graduate, establish their careers, then Sarah marrying and then, the best of all, the birth of my first grandchild, Freddie and now we have another grandchild on the way. This is so exciting for me, life always brings so much to look forward to. Every extra day I’ve been given is special in its own unique way.

Our plans this holiday have come unstuck a little as I’m actually struggling with parainfluenza virus and alongside that pseudonoma pneumonia that always flares and inflames my lungs when I’m fighting any illness or rejection of my new organs. With the support and help of my transplant team though, we’ve managed to make it here. I’m on intravenous anti-biotics and allowed to do them from home or where home happens to be this week, rather than being hospitalised – it’s not new to me, I’ve done this often now over these years post transplant.

Being immunosuppressed can bring its challenges. I’ve already been back to Papworth again since we’ve been here, because my longline stopped working, my veins are poor now, but they sorted things out and got me back on track to continue our special celebrations with family. I have the Transplant Team there to thank for getting me through thick and thin and being able to reach this five years post transplant mark.

While we’ve been here, we’ve already celebrated Rob’s 60th birthday and our 28th Wedding anniversary – more milestones to add to many. Every single one is special. Five years post heart and lung transplant feels a very special milestone in more ways than one. Only 50% of lung transplant patients survive five years and beyond – it’s always been my long term goal to achieve this and it feels a huge achievement given the struggles with my lungs over the last few years.

I stare out to the sea and know that I’ve been fortunate, not only to have received my transplant in the first place, but to be given all this extra time with my family and a second chance to experience so many new opportunities and challenges that life brings. The horizon spreads wide in front of me and it fills me with hope for so much more to come. Well there’s a new baby to look forward to next spring, that’s going to be amazing for a start…

There isn’t a day goes by where I don’t thank my donor and their family for my gift of life.

September

It’s difficult to have a favourite month, as every month of the year has something special to offer. There’s always something unique to anticipate as each month looms on the horizon: from the festive month of December and all the hectic preparations for Christmas, to the peace, tranquility and perhaps even snow of January; from the anticipation of lighter evenings and warmer days during those spring months and the sunshine, heat and holidays of the summer.

September has always felt special to me though. I suppose it starts back from school days and the start of the school and academic year being September. September always feels like the time for a fresh start, new learning and new beginnings even more so than January when we’re supposed to reflect on the past year and think about new resolutions for the year ahead.

September was the month when Rob and I chose to get married and the month when I received my life saving transplant, so it’s a month that culminates in celebrations for our family. If I could have chosen which month to have received my transplant, it would have been September. For me, it truly is a month of new beginnings; a month to celebrate life and all it has to offer.

I always look forward to the weather in September, it’s usually cooler after the heat of summer, but still mild enough to be out and about enjoying the sunshine and fresh air. We’re usually lucky during this month as we often have plenty of sunshine and it’s calmer and quieter after the busyness of the school holidays.

We’ve just passed the Autumn Equinox, where the astrological year is marked by the sun crossing the earth’s equator from north to south. This marks the beginning of Autumn, nights drawing in and cooler weather. The meterological year marks the beginning of September as the start of autumn. Whichever way the start of autumn is defined, September is definitely the month where summer somehow manages to gradually ease into autumn. The garden defines this: we still have plenty of summer flowers – annuals still happily flowering along until the first frosts hit, but then many flowers have turned to fruits and berries, ripe for picking and preparing for winter.

For me, September is the month that leads us to crispy autumn walks, cosy warm evenings by the fire, enjoying the last of the warmer weather and then digging out those warmer winter jumpers and clothes. The beginning of a whole new season to embrace.

That Was August…

The days of August have flown so quickly. I think it’s because we’ve been so busy just enjoying life and the exceptional weather.

During the first few weeks we were away in the Lake District and then we had a week in south west Scotland. We experienced a wide range of weather from thirty degrees heat, to rain and stormy winds and then very pleasant sunny and cooler weather, which I enjoy most as I can breathe better and be more active.

We really tried to ‘pack it in’ and live those long summer days to the fullest, getting out and about from morning til dusk and visiting interesting places and catching up with family and friends.

Back home again for the rest of August, the weather continued to be good and we’ve also had a few welcome downpours after the last few hot and dry months. After turning yellow and dying back, the grass is bright green once again and the plants in the garden have sprung back to life. Many of the plants are enjoying a second flush of flowers.

Since we’ve been home, we’ve carried on enjoying the lovely summer days, catching up with friends, having days out. I’ve also managed to cram in lots of medical things, various scans and tests that have been pending that have all proved very positive and a full MOT at Transplant Clinic, which was a good one. So, all is as good as it can be on the health front.

For the first time in two years, I’d been allowed to go for three whole months without a clinic visit and I wasn’t fully convinced I’d stay the course, but I managed it and have to say that I’m feeling the best I have felt in a long time. Staying free from infection for a few months has definitely helped me get back on my feet properly at last. Summer has felt great because of this, as well as the beautiful weather we’ve had.  I’ve been pinching myself at times that I’ve actually got back to some normality and fitness after too many ups and downs with infections and hospital.

I’m optimistic now that this might continue. I’ve another three months off Transplant Clinic, although I’ve been referred back to UCLH now for the stomach fundoplication, as I’m fit and well again. This may throw a spanner in the works, but at least I’m in good enough health to go ahead with it and it needs to be done while I’m feeling fit. I’m already super-organised and have booked my flu jab, just trying to stay a step ahead of the game of battling infections.

One of the loveliest things we’ve been enjoying, has been spending time with family and in particular our little grandson Freddie. It’s been a sheer joy looking after him and taking him out and about on sunny days and just to enjoy watching him play out in the garden.

I treasure these special times with him. They are particularly poignant, as I enjoy every minute with him knowing it’s only thanks to my donor and their family that these moments have been made possible. A few years  ago, I wouldn’t have dared to dream of grandchildren.

Now we’re in September, it always was my favourite month, but with the anniversary of my transplant looming it will always be special and be held dear in my heart. It’s an emotional month for me and my family and we’re making lots of plans and looking forward to it.

July Heatwave

We’re at the end of July and it’s passed so quickly. It’s been an incredible month due to the heatwave we’ve been experiencing. The beautiful weather has continued on from springtime and it’s become hotter and hotter throughout July, temperatures reaching over 30 degrees at times. There’s been little rain since May and even then, there wasn’t that much.

Many plants have been flourishing in this heat. The honeysuckle that grows over our front door is always beautiful in July and throughout summer, but this year it’s been even more stunning than ever, brimming full of flowers. The high temperatures have accentuated its strong perfume. On many a hot day and night we’ve had to have all the windows open wide and its heady scent has been noticibly wafting inside when there’s a gentle breeze. It’s just gorgeous.

We’ve been having to water our many pots and baskets every day to keep them healthy as they’ve wilted and struggled in the daily heat, but most have managed to thrive especially the geraniums, which enjoy this Mediterranean type climate. The begonias have done well too, as they are succulents and hold water.

The garden is still looking colourful with the usual July plants flowering: crocosia always give that welcome fiery look in readiness for August; lavenders thrive and are full of busy bees and butterflies; mallow pink anemones buds are opening out and dahlias are thriving with a succession of flower heads one after another, after another.

Crocosia

Anenomes opening out amongst lavenders and daphnes

Lavender borders full of bees and butterflies

Beautiful pink dahlias

The lawn is the biggest giveaway that we’re in the middle of a heatwave. I’ve never seen it so brown, yellow and parched and so early in summer too. We’ve not had to mow it for weeks, which is perhaps a bonus. Hopefully, it will grow back and come green again with some rains or if we have cooler nights and morning dew.

We’ve been trying to get out and about when it’s been cool enough. Everywhere is very dry and dusty and the fields are parched and crops are already golden and being harvested early.

The weather has been so hot and dry that seed heads have just stayed still and haven’t shed in the rain or blown away as they would normally do.

The lavender, wildflower and sunflower fields at Hitchin Lavender, where we visited recently, are thriving in the heat and are an absolutely stunning sight to see amongst the dry and dusty countryside.

I think the heatwave probably sums up July and as we end the month, we’ve had a couple of thunderstorms and some much needed showers of rain, but it’s forecast to hot up again as we head into August… We shall see, but so far it’s been a memorable summer.

Midsummer

We’ve just had the summer solstice and the longest day of the year. We’ve been enjoying some beautiful and sunny warm weather this June, which seems to have continued on from spring. It feels like summer has been here for a while now.

The garden is in full bloom, bursting with Roses, honeysuckles and an assortment of beautiful flowering perennials. Colourful annual plants are tumbling out of pots and hanging baskets.

The lovely warm weather has made it a joy to be out in the garden every day either tending and tidying plants or simply relaxing and enjoying the birds and flowers.

Lots of you have been asking about my health and I’ve deliberately kept quiet on this front, as I don’t want to jinx anything, but I’ve been feeling much better now than I have in a very long time. After all the battles with rejection, infections and pneumonias of the last year or so, somehow I’ve pushed through and things seem steadier now and I’m feeling much fitter and stronger.

The weather has certainly been a good motivation for getting out and about and increasing my exercise capacity, pushing those lungs and building back my strength. I’m so grateful for this, it really does make me appreciate life and the chance to enjoy all it offers. I’m hoping things continue like this alongside with this lovely sunshine and the summer days to come.